The economic cost of dementia in Australia

Alzheimer’s Australia is hoping that new figures on how many people are living with dementia in Australia – and the costs associated with their care – will be a “very big wake-up call” for the government to do more on this issue.

The new figures were released in February 2017 in a report titled The economic cost of dementia in Australia 2016-2056.

They are an increase on previous estimates – now just over 400,000 people are living with dementia in Australia (compared with 353,000 in earlier estimates), and the cost of this is $14 billion per year.

The report also estimates how many people will be living with dementia in Australia in 40 years’ time, and the costs to the Australian economy over the coming 40 years.

It includes calculations of the savings that could be made if there was just a 5 per cent reduction in incidence in dementia in the future, and to the savings that could be made through technological advances and reduced hospitalisation.

Alzheimer’s Australia National President Professor Graeme Samuel AC said, “The time for action is now. If we don’t do something now, the cost is going to continue to grow to unsustainable levels.”

Alzheimer’s Australia is pushing for a national dementia strategy with committed funding. It is calling on the government to take immediate action on funding:

  • for a more comprehensive risk reduction program
  • to develop a consumer-based Quality in Dementia Care program to improve aged care services, both in residential aged care and in the community
  • to improve access to quality respite care to better support people with dementia living in the community, their families and carers.

The Alzheimer’s Australia press release in relation to this report is here.


Travelling with Dementia

Planning on going on a cruise? Flying to somewhere far away? A new booklet from Alzheimer’s Australia on Travelling and holidays with dementia tackles some of the practical challenges that can arise when a person with dementia is going on holiday. The booklet includes lots of suggestions and tips, and is set out alongside some lovely holiday photographs and quotes from family carers about how they prepared for their travels.

The booklet looks at travelling by various different ways – sea, air, car and public transport – and sets out some of the challenges and some strategies to consider. It looks at planning holidays, tips about accommodation, and things to consider on return. You can access the booklet here: https://www.fightdementia.org.au/files/NATIONAL/documents/Travelling-with-dementia.pdf 


Rethink Respite

For some time, the ‘Rethink Respite’ project has been working hard at improving take-up of respite among carers of people with dementia in Illawarra, NSW. As part of this it has developed some really good resources on respite for people with dementia, which are available on its website here. The project is now launching a new national study which will involve offering a series of online education and support sessions for carers to encourage them to give respite a try. Carers who are interested in accessing this sort of support are encouraged to find out more here.

Launch of ReThink Respite Online


How do I choose?

The Alzheimer’s Australia (Victoria) library has been producing an interesting blog on all thing related to dementia resources for a few years now (it’s worth a look any time). In November they’ve put out a list of 20 of the most borrowed items from the Alzheimer’s Australia libraries during 2016. They say they’ve chosen the list based on four criteria: it’s well written, gets consistently good feedback from borrowers, positive reviews from professionals, and that the library staff love it – something like ‘We recommend…’ stickers in book shops. So, perhaps you might find a Christmas present ideas or two here?! The list includes a range of books: personal accounts of living with dementia (‘Green Vanilla Tea’ by Marie Williams), fiction (‘Still Alice’ by Lisa Genova), DVDs and guides. https://dementiaresources.org.au/2016/11/15/how-do-i-choose/ 


Clinical Practice Guidelines on Dementia

This year saw an important breakthrough – the launch of Australia’s first Clinical Practice Guidelines on dementia, to give guidance on best practice in dementia care in Australia.

 

Now, an adapted version of these guidelines – aimed at people with dementia and carers – has been published. The 20-page guide is easy to read and sets out clearly what people with dementia and carers can expect: on diagnosis, assessment, care and support at home, advance care planning, and healthy living. The guide includes short lists of practical questions that people with dementia or carers can ask, for example, ‘Questions to ask about diagnosis’ or ‘Questions to ask about community services’.

 

The guidelines were developed with input from people living with dementia and carers working with the National Health and Medical Research Council’s Cognitive Decline Partnership Centre in Sydney, the same group that developed the Guidelines. The guide is available to download online and is called A consumer companion guide to the Clinical Practice Guidelines and principles of care for people with dementia.


Australian Journal of Dementia Care

It comes out 6 times a year and is aimed at professional staff working with or supporting people with dementia – in hospitals, nursing and residential care homes, day facilities and the community.

You can download a free sample to take a look – just go to the Journal’s website. Sample articles from back issues are also available to read.

The Journal includes news and views, research, practice and resource updates, and events listings.

It’s published by Hawker Publications, the same company behind the UK Journal of Dementia Care.


One man turned nursing home design on its head

92-year-old Norma had a strange and heartbreaking routine.

Every night around 5:30 p.m., she stood up and told the staff at her Ohio nursing home that she needed to leave. When they asked why, she said she needed to go home to take care of her mother. Her mom, of course, had long since passed away.

Behavior like Norma’s is quite common for older folks suffering from Alzheimer’s or other forms of dementia. Walter, another man in the same assisted living facility, demanded breakfast from the staff every night around 7:30.

Jean Makesh, CEO of Lantern assisted living facilities, says he meets folks with stories like these every day. It’s their stories that inspired him to make some changes at Lantern.

“I thought I knew a lot about elderly care. The more and more time I was spending with my clients, that’s when I realized, ‘Oh my god, I have no clue.'”

Click here to read the full article