Dementia and Related Disorders Conference 2025

Dementia and Related Disorders Conference 2025

Friday, 26th September

9 am- 10 am Registration and morning tea

10 am – 3 pm Lectures, Workshops, Expo Stands

Lunch 12.30 pm – 1.25 pm

Mooloolaba TAFE

Morning tea and a light lunch are provided.

Attendance is FREE. Parking is easy as it is TAFE Vacation time.

Register on Trybooking

Contact: Lorrae carersoutlook@gmail.com

0418 298 183

The overwhelming force in dementia is the continual change an individual will experience, and its impact on family members and friends.

The brain is affected, so all of our human activities and functions will change.

There are many forms of dementia, including Alzheimer’s Disease, Vascular Dementia, Lewy Body Dementia, Fronto-temporal Dementia and Huntington’s Disease.  Related disorders like Parkinson’s, Multiple Sclerosis, Down Syndrome, Acquired Brain Injury, stroke, heart attack, may show similar changes.

Changes in memory, thinking ability, personality, behaviour, communication, physical, eating, and sleep will occur during the course of the disease.  The lessening of abilities means there will be an increase in dependence on support from family and staff until death.

This conference has been organized to give information, support, referrals, and a voice to those who are diagnosed with dementia, their family carers, and staff. It is a time to gather, to share and to network.  We are extremely grateful that TAFE Mooloolaba has supported the local community with offering this venue for the Dementia Conference.

There is much to learn about these changes.  The speakers and topics have been selected from listening to the needs of those on this journey.

Dementia is an emotional rollercoaster journey in which one may experience a range of feelings like loss, grief, and guilt, so the conference is a time to find meaning in your journey with others who understand.

Attendees may also experience enjoyment from music, art, singing, and lucky door prizes. Attendees may make new friends travelling on the same journey.

We aim for attendees to leave with their questions answered and feel connected with others who understand and can support them. We wish folk to feel a sense of hope, empowered with a sense of realism, and armed with resources to cope.

Speakers:

The brain is an amazing part of our body, controlling our nervous system.  The lecturers and workshop leaders are highly respected in their fields, and we appreciate their generosity of time and knowledge.

Who better to explain the workings of the brain than a brain researcher? Associate Professor Victor Anggono, Qld Brain Institution, Uni of Qld is researching the inner workings of the brain and how brain cells communicate with each other.  Geriatricians, Dr Sanmarie Duddridge and Dr Sam Hutson will give a better understanding of dementia and changes. Pharmacist, Julianna Neill will discuss medications and complementary treatments for these changes.

Young people (younger than 65 years of age) can also be diagnosed with dementia. Discussions with family carers of loved ones and researchers, Dr Maryam Ghahramani, Uni of Canberra and Professor Victoria Traynor, Uni of Sunshine Coast and others will share their insights into this age group.

Occupational Therapist, Leah Dillon from Ramsay Health, Selangor Hospital, and Speech Pathologist, Edwina Kruizinga, Sunshine Beach Speech Pathology, will talk about their roles.  Leah will focus on the dementia journey and support needed, while Edwina will discuss singing and music as a practical way to support speech therapy in communication and swallowing. She operates a choir for those with neurological disorders.

Blue Care will facilitate the palliative and end – of – life care workshop.  Family carers expressed that they wished to be prepared for this stage of the journey.  The staff and volunteers from Blue Care Grief and Loss Support will give support in this workshop.

Mediation and Mindfulness is a skill that allows us to have a sense of focus and peace.  Michelle Eckles, Mediation Sunshine Coast, will discuss these techniques. People living with dementia and their carers have expressed positive outcomes in mindfulness.

This workshop has been set in the first session for staff who may have studied dementia but would benefit from this work and lifestyle balance and relaxation technique.

Art is a way to occupy and express and Southern Cross Care’s Karen Wilson will lead in a simple art form.  Being meaningfully occupied in nursing homes, private homes and hospital settings can support cognition but assist in preventing delirium.   This is a practical workshop for those who like to use their minds and hands.

Financial considerations need to be decided upon as health care will need to be provided. The person with dementia will lose capacity, and guidance will be needed to manage finances. Katie Spence, Sage Care Advice, will lead a workshop on the legislative changes in Residential Care and financial changes. 

 

 


 

The Expo Stands will be manned by staff who can assist with information on dementia, family carers’ needs, My Aged Care / Support at Home, legal aspects like Enduring Power of Attorney, Adaptive Equipment, Research projects which give connections and in-depth understanding, finances, and Centrelink support.

This is a Once-a-Year! 

One Stop-Shop for Dementia,

for

Family Carers,  Family members,  staff, seniors who wish plan ahead and gain information on support

Please help us to help others.  Let others know who need this support.

 

Authors: Lorrae and Vince O’Rourke

 

 

 

 

 


Dementia & Related Disorders Conference 2024

Dementia: Changes, Care and Connections

This FREE Conference is a ONE-STOP SHOP for information and support on dementia and aged care. Networking among people with dementia and related disorders like Parkinson’s, their family members, family carers, staff, volunteers and students ensures learning is shared in a supportive environment.

This is the highlight of Dementia Month, September, on the Sunshine Coast when members of the dementia community come together. It’s a time for seniors to gain information and especially those who wish to plan ahead. Feedback said it was the friendly, no frills conference which is comfortable for anyone to ask a question. I have never been to a university or college but I felt accepted and it was good to meet with other family carers. Staff network with other staff which is effective for referrals and they have face-to-face connections with clients.

Practical workshops on art, chair exercise, relaxation and aromatherapy will be operating so clients can attend with family carers or staff.  If it is appropriate for the client to be independent, the family carer can attend the other lectures. 

There are excellent workshop speakers on topics that seniors can benefit from including: 

Finances e.g Services Australia, Centrelink, Sage Care Advice

Law: Special Counsel in Elder Law, Peter Porcellini MMLaw; Relationships Aust, Aged and Disability Advocacy

Respite: Range Care, Staffing Options

Technology and Aides: Robot Research, Don Wo, Griffith University, Lakeside Mobility, Leah Dillon, OT, Ramsay Health

Main lectures: would be valuable as well for staff

Dr Samantha Hudson, Geriatrician on Dementia and the Journey

Dr Colin Dicks, Radiology Cancer Specialist on Death and Dying Author of Book Death, Dying and Donuts

Dr Igor Bonacossa Pereira (Professor Massimo Hilliard’s lab) Qld Brain Institute on Shielding brain cells from damage

David Muir AM, Chair of the Clem Jones Trust on the philanthropy and partnership 

Trade displays help on a number of items:  to sell and move house, Safe Mate. Modified Equipment, My Aged Care advice, Family Carers Information, Relationships Aust, Aged and Disability Advocacy, Centrelink etc.

At lunch time there will be Q and A booths so individuals can have private conversations eg law and dementia.

Lucky door prizes. 

Thursday, 19th September, 2024

10 am – 3 pm. Registrations and view trade displays from 9 am

(you do not need to attend all day)

At Mooloolaba TAFE, 34 Lady Musgrave Drive, Mountain Creek

No worries with car parking, and fully accessible

MUST REGISTER

so we can organise seating, morning tea and light lunch

Trybooking: Open the link below

https://www.trybooking.com/CURHZ

Lorrae: carersoutlook@gmail.com

0418 298 183

THANK YOU to the many who have donated and especially to Mooloolaba TAFE and Sage Care Advice.


Conference 2023: Dementia Outlook-one day at a time

The focus of Conference is on Occupation and Activities. There are many benefits of being engaged in meaningful recreational activities and prescribed therapy.

Dr Matovic is studying socialization and brain health and will provide a video presentation.

What do we know about the role of social connections in brain health in older adults?


Social connections are important for brain health in older adults with healthy cognition and those who have mild cognitive impairment and dementia.

This article describes some key research studies in the area.


Social participation in older adults with Mild Cognitive Impairment (MCI)
Studies show that increasing social participation in older adults with Mild Cognitive Impairment (MCI) may reduce their risk of developing dementia. Individuals with MCI are 3.3 times more likely to develop dementia compared to age-matched participants over 2-5years 1.
However, greater frequency and variety of social activities is related to lower risk of progression from mild to severe cognitive impairment over 3 years 2. Another study found that engaging in community meetings or cultural classes was associated with a higher likelihood of reverting from MCI to cognitively healthy status over 4 years 3.
Despite the potential for social activity to reduce MCI, people with MCI typically report poor social support, social isolation, and loneliness 4.
This indicates that methods to increase social engagement in this population are needed.


Social participation in older adults with dementia
Similarly, social participation in people with mild-to-moderate dementia has the potential to slow cognitive decline. For example, a knitting group was shown to increase the use of cognitive processes such as memory and problem solving, and the use and maintenance of communication skills 5.
However, 50% of people living with dementia report being lonely and 70% have stopped doing their usual social activities due to psychological
barriers such concerns about reactions from other people, wandering, difficulties maintaining conversations, lack of confidence, and shrinking social networks 6, and logistical barriers such as stopping driving 7. Strategies to address these psychological and practical challenges in maintaining social participation are needed.


Social participation in older adults with healthy cognition
Social isolation is one of the top modifiable late-life risk factors for developing dementia 8. Research in cognitively healthy older adults has shown that feeling socially connected to a variety of different social groups is important for maintaining cognitive function 9,10. Another study found that in older adults with healthy cognition, memory over 15 years is positively associated with combined frequent face-to-face and online contact compared to using a single social contact mode 11. However,research using focus groups of carers/supporters has found that social connection was reduced in carers/supporters due to lost companionship (“He used talk about politics, about anything we could talk about. I’ve lost my best friend”) and other people’s stigma restricting opportunities for social contact 12.

Carers/supporters indicated an increased need for social support to deal with changes in social roles (e.g., transition from spouse to carer role; e.g., “I don’t have anybody to talk to about it”12). Therefore, social interventions for carers/supporters are also needed to maintain or increase meaningful face-to-face and online social activities, to reduce their risk of dementia.


Given the importance of social participation for reducing the progression of, or development of, cognitive impairment and loneliness 2,13, there is a clear need for more research to understand how to increase and maintain frequent and high-quality social interactions in people with MCI/dementia and their carers/supporters. The Macquarie University social participation project, conducted by Dr Diana Matovic, aims to adapt a psychosocial intervention to increase the frequency of participation in a variety of social
activities for people with MCI/early dementia and their carers/supporters.

References:

  1. Petersen RC, Lopez O, Armstrong MJ, et al. Practice guideline update summary: Mild cognitive impairment: Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology. Neurology. Jan 16 2018;90(3):126-135.doi:10.1212/wnl.0000000000004826
  2. Hughes TF, Flatt JD, Fu B, Chang CC, Ganguli M. Engagement in social activities and progression from mild to severe cognitive impairment: the MYHAT study. International psychogeriatrics. Apr 2013;25(4):587-95. doi:10.1017/s1041610212002086
  3. Shimada H, Doi T, Lee S, Makizako H. Reversible predictors of reversion from mild cognitive impairment to normal cognition: a 4-year longitudinal study. Alzheimers Res Ther. Mar 13 2019;11(1):24.doi:10.1186/s13195-019-0480-5
  4. Samtani S, Stevens A, Brodaty H. Preserving and enhancing social health in neurocognitive disorders. Curr Opin Psychiatry. Mar 1 2021;34(2):157164. doi:10.1097/yco.0000000000000683
  5. Gjernes T. Knitters in a day center: The significance of social participation for people with mild to moderate dementia. Qualitative Health Research. 2017/12/01 2017;27(14):2233-2243. doi:10.1177/1049732317723890
  6. Alzheimer’s Society. Dementia 2013: The hidden voice of loneliness. 2013.
    https://www.alzheimers.org.uk/sites/default/files/migrate/downloads/dementia_2013_the_hidden_voice_of_loneliness.pdf
  7. Mezuk B, Rebok GW. Social integration and social support among older adults following driving cessation. The Journals of Gerontology: Series B. 2008;63(5):S298-S303.doi:10.1093/geronb/63.5.S298
  8. Livingston G, Huntley J, Sommerlad A, et al. Dementia prevention, intervention, and care:2020 report of the Lancet Commission. The Lancet. 2020;396(10248):413-446. doi:10.1016/S0140-6736(20)30367-6
  9. Haslam C, Cruwys T, Haslam SA. “The we’s have it”: evidence for the distinctive benefits of group engagement in enhancing cognitive health in aging. Soc Sci Med. Nov 2014;120:57-66.
    doi:10.1016/j.socscimed.2014.08.037
  10. Haslam C, Cruwys T, Milne M, Kan CH, Haslam SA. Group ties protect cognitive health by promoting social identification and social support. J Aging Health. Mar 2016;28(2):244-66.doi:10.1177/0898264315589578
  11. Rafnsson SB, Maharani A, Tampubolon G. Social contact mode and 15-Year episodic memory trajectories in older adults with and without hearing loss: Findings from the English Longitudinal Study of Ageing. J Gerontol B Psychol Sci Soc Sci. Jan 12 2022;77(1):10-17.
    doi:10.1093/geronb/gbab029
  12. Carlozzi NE, Sherman CW, Angers K, Belanger MP, Austin AM, Ryan KA. Caring for an individual with mild cognitive impairment: a qualitative perspective of health-related quality of life from caregivers. Aging Ment Health. Sep 2018;22(9):1190-1198.doi:10.1080/13607863.2017.1341468
  13. Victor CR, Rippon I, Nelis SM, et al. Prevalence and determinants of loneliness in people living with dementia: Findings from the IDEAL programme. Int J Geriatr Psychiatry. Aug
    2020;35(8):851-858. doi:10.1002/gps.5305

You can help us by participating in research

to help us to understand what factors make it difficult to maintain social activities once someone has been diagnosed with MCI/early dementia or has started caring for/supporting someone with MCI/early dementia. We also want to know what factors help people to maintain social activities.

Please contact Dr Diana Matovic on
(02) 9850 8655 or diana.matovic@mq.edu.au if you are 60 years or older and have MCI/early dementia or you are a current or past carer for/supporter of someone with MCI/dementia and you are interested in participating in this research.


Dr Diana Matovic is a postdoctoral researcher and a member of the Macquarie University Lifespan Health and Wellbeing Research Centre. Dr Matovic manages the Wellbeing Check Tool designed to screen for risk factors for dementia and poor wellbeing (e.g., depression,social isolation) in older adults in primary care settings and provide evidence-based recommendations for risk reduction. Dr Matovic also works on related projects such as looking at social participation, mental health, and wellbeing in older adults with healthy cognition and older adults with mild cognitive impairment/early dementia and their older adult carers/supporters, and the mechanisms underlying positive mood in older adults.

Dementia Outlook – one day at a time Conference

at Mooloolaba TAFE, Sunshine Coast, Queensland, Australia.

Thursday, 21st September, 2023.