A list of Dementia Specific and family carer organizations:

The Sunshine Coast Dementia Network collates and updates a

Phone Contact List: of services and organisations which can assist.

This was created with the knowledge that many are not computer literate, literate, have English as a second language or perhaps not financial to own a computer or have internet connection.

Those with internet access can simply, search the name of the organisation.

Open link:  SCDN Phone Contact List

SCDN Phone Contact List

There are four major dementia specific organisations: Alzheimer’s Queensland; Dementia Australia;  Dementia Support Australia and OzCare Dementia Advisory and Support Service.

We advise that individuals make direct contact with the organisation to confirm event and service details.

DEMENTIA AUSTRALIA

FORMERLY KNOWN AS

ALZHEIMER’S AUSTRALIA

• https://www.dementia.org.au/resources/help-sheets

 

 

ALZHEIMER’S QUEENSLAND 

 https://www.alzheimersonline.org

Formerly known as Alzheimer’s Association of Queensland.

Not only for people diagnosed with Alzheimer’s disease, but all forms of dementia.

Founded in 1983, Alzheimer’s Queensland (AQ) provides inclusive, tailored care for older Australians. Offering world-class aged care by 500+ professionals, including dementia care, wellness programs, and diverse background support.

Administration office: 33 Tryon Street, Upper Mt Gravatt, Brisbane, QLD 4122

1800 639 331

Offers a range of services including residential facilities, respite care, and in-home support, nursing and allied health services, education and training.

33 Tryon Street, Upper Mt Gravatt QLD 4122

Dementia Advice line 24/7  1800 639 331

AQ’s Multi Service Centres are across four regions of Southeast Queensland and provide: Toowoomba, Ipswich , Gold Coast, Brisbane: Gordon Park, Garden City (Upper Mt Gravatt)

• Consumer Directed Care Packages
• Allied Health Wellness Programs
• Social Support & Personal Care
• Dementia Behaviour Management
• Dementia Nursing
• Centre Based Respite
• In-Home Respite
• Overnight Cottage Based Respite
• Emergency respite
• Domestic Assistance
• Home Maintenance
• Support Working Carers
• NDIS Services
• Services for the under 65years
• Carer Support Group Meetings
• Individualised activity programs based on the needs and interests of each individual

AQ’s  Residential Care: Garden City (Upper Mt Gravatt); Rosalie; Windsor

• • Nursing homes for dementia
  • Permanent care
  • Residential respite
  • Palliative care
  • Ageing in place
  • Independent living units
  • Secure living
  • Lifestyle activities
  • Wellness programs and allied health
  • Carer support

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Dementia Support Australia

https://www.dementia.com.au/

DSA can be contacted 24/7, 365 days a year. 

Phone:        1800 699 799
Email:         dsa@dementia.com.au

Newsletter: subscription

Funded by the Australian Government and led by HammondCare, we bring together industry-wide expertise, build sector capacity and create partnerships for better dementia care around the country.

Dementia Support Australia delivers support that is tailored to your needs. Our team will help determine the most appropriate service – and this can change over time. You can learn more about our programs here.

 Dedicated helpline 24 hours a day, 7 days a week

 Trained dementia consultants work with you, so you receive the right support at the right time.

Locations of Specialist Dementia Care Program Units

Dementia Behaviour Management Advisory Service

Childhood Dementia Support

GP Advice Service

 

For more information contact 1800 Ozcare (1800 692 273)

Ozcare-  The Dementia Advisory and Support Service:

offers information and support to people with dementia and their families throughout Queensland.

For some, this may mean support to go through a diagnosis process, if they are concerned about their memory. For others, it may mean help to get to grips with dementia: for example, suggestions for facing daily challenges.

We also help people to navigate the aged care system so that they know all that is on offer to people with dementia.

We can visit you in your own home or wherever you feel comfortable to speak – either face-to-face or by telephone. We usually work with people for about 2-3 months to help them get a plan together for living with dementia.

A free service, funded by the Federal Government’s Commonwealth Home Support Program (CHSP).

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DEMENTIA TRAINING AUSTRALIA

https://www.dta.com.au/

1300 229 092

(FORMERLY DEMENTIA TRAINING STUDY CENTRES)

Improving the health and wellbeing of people living with dementia
and the staff who support them.

Resources for workers and family carers in aged and dementia care.

https://dta.com.au/resources/

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Australian Journal of Dementia Care

https://journalofdementiacare.data.com.au/

Have you ever heard of the Australian Journal of Dementia Care? It’s been up and running since 2012, and is an Australian version of the long-running and well-known Journal of Dementia Care from the UK.

It comes out 6 times a year and is aimed at professional staff working with or supporting people with dementia – in hospitals, nursing and residential care homes, day facilities and the community.

You can download a free sample to take a look – just go to the Journal’s website. Sample articles from back issues are also available to read.

The Journal includes news and views, research, practice and resource updates, and events listings.

Managed by Dementia Training Australia and published by the University of Wollongong,

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WICKING DEMENTIA RESEARCH AND EDUCATION CENTRE

http://www.utas.edu.au/wicking 

1800 982 600

Our range of free Massive Open Online Courses (MOOCs) offer university-quality education that is designed to be accessible and appealing to people from diverse backgrounds and is based on the latest research.

 

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Australian Government – Department of Health and Aged Care

https://www.health.gov.au/topics/dementia

Policy initiatives, programs and campaigns to help improve your health and the health of all Australians.

• Programs
• Research
• Aged care measures
• Dementia Expert Reference Group
• National Dementia Action Plan

• Programs

  We fund dementia programs to support people living with dementia, their families and carers.

  • National Dementia Support Program (NDSP)
  • Dementia-Friendly Communities
  • Dementia Carer Respite and Wellbeing Program
  • Dementia Behaviour Management Advisory Service (DBMAS)
  • Severe Behaviour Response Teams (SBRT)
  • Specialist Dementia Care Program (SDCP)
  • Dementia Training Program (DTP).

  For more information, see the list of initiatives and programs relating to dementia.

• Resources: 

https://www.health.gov.au/topics/dementia/dementia-resources

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The Australian Institute of Health and Welfare

The AIHW is an independent statutory Australian Government agency with more than 30 years of experience working with health and welfare data.

Our vision is to provide stronger evidence (data and information) for better decisions and improved health and welfare.

Dementia specific:

https://www.aihw.gov.au/reports-data/health-conditions-disability-deaths/dementia/overview

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QLD BRAIN INSTITUTE – THE UNIVERSITY OF QUEENSLAND 

https://qbi.uq.edu.au

The Queensland Brain Institute is a leading neuroscience research institute with collaborators across more than 48 countries.

QBI research ranges across the spectrum, from bench to bedside, and has implications for improving human health, innovation and understanding of the brain.

Research Centres: Clem Jones Centre for Ageing Dementia Research; Asia-Pacific Centre for Neuromodulation; Science of Learning Research Centre; Joint Sino-Australian Laboratory of Brainnetome

Subscribe to newsletters and events.

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NPS MEDICINEWISE

www.nps.org.au

• Medicines & Dementia: A resource for people with dementia and their carers
• Strategies to address distress
• Other conditions with dementia: what to ask your doctor
• Tips for good medicine management

Medicine finder

https://www.nps.org.au/medicine-finder

Medicine Wise  App

https://www.nps.org.au/medicinewiseapp

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MY AGED CARE (MAC) funded by Australian Government

If you need some help around the house or think it’s time to look into aged care homes, My Aged Care is here to help.

http://www.myagedcare.gov.au/

• https://www.myagedcare.gov.au/news-and-updates/new-dementia-support-pilot-launched Dementia Companion: https://www.mydementiacompanion.com.au/booking
• Health Direct: Overview of dementia and find dementia related services
• Caring for someone with dementia

 

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DPS PUBLISHING AGED CARE GUIDE

 https://www.agedcareguide.com.au/

1300 606 781

Guide to aged care facilities, retirement villages and home care services by State and region.

 

Website and hard copies for sale.

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CARERS QUEENSLAND 

www.carersqld.com.au

1800 242 636

Represents and advocates on behalf of carers throughout Queensland.

National Disability Insurance Scheme (NDIS) Maroochydore (service area)

(for people with dementia aged 65 and under)

Level 2, 43 Plaza Parade, Maroochydore 4558

P: 5409 3300
E: sunshinecoastlac@carersqld.com.au

For further NDIS information visit the NDIS website

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Carer Gateway – Wellways 

1800422737   https://www.carergateway.gov.au/ 

Services and resource to support family carers:

Phone counselling, an online carer forum, and self-guided coaching and skills courses to give you support, skills and information. You can also download and print out a summary of some key carer information.

Wellways: Maroochydore: Counsellor: Annette Sollom 0435 114 942

https://www.wellways.org/carers

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RESPITE

GETTING THE MOST OUT OF RESPITE 

2077_DCRC_respite_guide_6web

Carer Gateway/Wellways Respite Information

1800422737   https://www.carergateway.gov.au/ 

https://www.carergateway.gov.au/respite?cta

Emergency Respite: It is vital to ensure that the person diagnosed with dementia has alternative care if you cannot care. You may become ill or injured in the middle of the night.

https://www.carergateway.gov.au/sites/default/files/documents/2019-04/emergency-care-plan.pdf

In-home respite services: Many organisations can provide in-home respite services. Check My Aged Care or DPS Publishing Aged Care Guide.

Day Respite Centres: Some may have family carer Support Groups.

Suncare Maroochydore  5443 7655;

Blackall Range, (Range Care) Nambour & District 5441 4441;

Blackall Range, (Range Care) Gympie 5321 3444

Glasshouse Country Care 5494 6948;

Noosa Community Support  5329 6175;

Centacare Jessie Witham Centre Gympie 5482 8715;

Blue Care Coolum 54463877; Blue Care Gympie 5482 7533

Blue Care Caloundra/Dickey Beach 5438 5000  Dickey Beach Blue Care Respite

Day, Overnight Longer stay care:

Blackall Range, (Range Care) Flaxton  5445 7044;

Adapt Lifestyle Support:  Registered NDIS Provider; Young onset dementia specialist; social work ethos; LGBTI Support.  33 Honeydew Pl, Ninderry QLD 4561. 0451 180 905 / 07 5472 8421  mail@adaptlifestylesupport.com

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SUNSHINE COAST HOSPITAL AND HEALTH SERVICE 

https://www.health.qld.gov.au/sunshinecoast/html/services/advance-care-plan.asp 

• Advance Care Planning
• Statement of Choices Document

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ALLIED HEALTH

For Consumers – A newly developed resource on the role of allied health professionals in assisting consumers and carers to maintain  their quality of life while living with dementia.  https://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0003/310836/Allied-Health-Professionals-and-You.pdf

For Allied Health Professionals – A matching guide for allied health professionals assisting consumers and carers to maintain their quality of life while living with dementia.  https://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0004/310837/Better-health-dementia-allied-health-professionals-web2.pdf

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CONTINENCE FOUNDATION OF AUSTRALIA   

https://www.continence.org.au

is the national peak body promoting bladder and bowel health.  People with dementia will inevitably have loss of control of bladder and bowel and they and carers will need support with advice, products and financial assistance.

Help line 1800 33 00 66

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CARING FOR THE NEEDS OF DIVERSE CLIENTS WITH DEMENTIA  

 http://goccare.com.au/resources/

Memory book –  A helpful resource produced by GOC to help carers provide culturally sensitive care to clients from diverse backgrounds. Examples here are for Greek and Arabic-speaking consumers:

http://goccare.com.au/wp-content/uploads/GOC-Pages-of-My-Life-v8.1-P1.pdf

http://goccare.com.au/wp-content/uploads/GOC-Pages-of-My-Life-Arabic-May-2016.pdf

Diversicare www.diversicare.com.au

 

 

 

 

 

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AUSTRALIAN JOURNAL OF DEMENTIA CARE 

 http://journalofdementiacare.com/

Have you ever heard of the Australian Journal of Dementia Care? It’s been up and running since 2012, and is an Australian version of the long-running and well-known Journal of Dementia Care from the UK.

It comes out 6 times a year and is aimed at professional staff working with or supporting people with dementia – in hospitals, nursing and residential care homes, day facilities and the community.

You can download a free sample to take a look – just go to the Journal’s website. Sample articles from back issues are also available to read.

The Journal includes news and views, research, practice and resource updates, and events listings.

It’s published by Hawker Publications, the same company behind the UK Journal of Dementia Care.

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ADVOCACY

ADA Australia

https://adaaustralia.com.au

Aged and Disability Advocacy Australia is a not-for-profit, independent, community based advocacy and education service with more than 25 years’ experience in supporting and improving the wellbeing of older people and people with disability.

(ADA can help with lodging a complaint with a service; managing difficulties with your Enduring Power of Attorney, Guardianship or administration arrangements or with residential care, in home care or community care service in Qld)

Information and Advice Line 1800 818 338 Between 9.30 – 4 pm Monday to Friday. Sunshine Coast advocate: Debbie Smulders.

Can give talks to groups.

DEMENTIA CARE BOOKS

Mind Your Brain

Mind Your Brain, published by the University of Queensland Press in 2021, is a book on dementia written by Dr Kailas Roberts. It provides an accessible and easy-to-read guide to dementia and includes information about how to recognise dementia, how it is assessed and how to manage the issues it can create.

https://www.yourbraininmind.com.au/products.html

You Are Not Alone – Sue Downey

Christine Bryden’s Books

I Wish I Were a Leper Vince O’Rourke    vinceorourke@hotmail.com

ORDER YOUR COPY
Book Cost $25 (includes postage within Australia)
All Payments to be made out to Vincent J O’Rourke by
Cheque or by Direct transfer to Vincent J O’Rourke
BSB: 124 085 Account number: 20628836
Contact: Vince O’Rourke, Carers Outlook,
50 Savilles Rd Nambour 4560.
54760642 or 0418298183
Email: vinceorourke@hotmail.com

SPEAKERS

Speaker:

Presenters:

Vince and Lorrae O’Rourke

Topics: What is Dementia?  Person Centred Care; Behaviour and dementia. The carer’s role in dementia? Is Love Enough? Carer wellness.

Spirituality in Dementia and the Caring Role

Author Talk on book I Wish I Were A Leper

carersoutlook@gmail.com     0418298 183