FORMERLY KNOWN AS
ALZHEIMER’S AUSTRALIA – www.fightdementia.com.au
- About dementia
- Changed behaviours and dementia
- Looking after families and carers
- Caring for someone with dementia
- Residential care and dementia
- Information for people with dementia
- Aboriginal and Torres Strait Islander people
- Lewy body disease
- Younger onset dementia
- Tips to assist social engagement
- Dementia Q&A
- Other information
- Your Brain Matters
- How can I find out more?
- Using Respite Care
Sunshine Coast Friendship Group:
For the person with dementia and the family or friend carer.
Meets last Wednesday of month 2-4 pm.
At IRT, Woodlands. The Bosco Cafe, 22 Lacebark Street, Meridan Plains.
Free to attend. Purchase own afternoon tea.
Must register: Dementia Australia on 1800 100 500.
BUILDING DEMENTIA FRIENDLY COMMUNITIES – https://www.fightdementia.org.au/national/campaigns/dementia-friendly-communities/toolkits
- Dementia Friendly Business Toolkit
- Dementia Friendly Community Toolkit
IS IT DEMENTIA – http://isitdementia.com.au/
Introduced by Dr Andrew Rochford, this resource has been developed for workers in banking, retail, transport, correctional and emergency services to help in recognising the signs of dementia. It is hoped this will help people with the condition navigate services and receive needed assistance as part of making our communities dementia-friendly.
ALZHEIMER’S QUEENSLAND – https://www.alzheimersonline.org
Offers a range of services including nursing homes, respite care, and in-home support.
Help Advice line 24/7 1800 639 331
Telephone Support Group. Library.
Dementia Matters quarterly newsletter. https://www.alzheimersonline.org/page/our-services/Education-Training/Dementia-Matters/
NPS MEDICINEWISE – www.nps.org.au
- Medicines & Dementia: A resource for people with dementia and their carers
- Strategies to address distress
- Other conditions with dementia: what to ask your doctor
- Tips for good medicine management
DEPARTMENT OF SOCIAL SERVICES – www.dss.gov.au
- Dementia: a national health priority area
- Information for people with dementia, their families and carers
- Australian Government Programmes to support people with dementia, their families and carers
- National framework for action on dementia
MY AGED CARE – http://www.myagedcare.gov.au/
- Dementia: help is available
- Health Direct: Overview of dementia and find dementia related services
- Caring for someone with dementia
- Legal support for family and carers
DPS PUBLISHING AGED CARE GUIDE – https://www.agedcareguide.com.au/
Guide to aged care facilities, retirement villages and home care services by State and region.
DEMENTIA TRAINING STUDY CENTRES – http://dtsc.com.au/
Resources for workers in aged and dementia care.
DEMENTIA SUPPORT AUSTRALIA (DSA) – www.dementia-australia.org
Dementia Behaviour Management Advisory Service (DBMAS) & Severe Behaviour Response Teams (SBRT)
Provides 24/7 national support 1800 699 799
QLD BRAIN INSTITUTE – THE UNIVERSITY OF QUEENSLAND – https://qbi.uq.edu.au
QBI research ranges across the spectrum, from bench to bedside, and has implications for improving human health, innovation and understanding of the brain.
Research Centres: Clem Jones Centre for Ageing Dementia Research; Asia-Pacific Centre for Neuromodulation; Science of Learning Research Centre; Joint Sino-Australian Laboratory of Brainnetome
Subscribe to newsletters and events.
A new national guide to respite services for carers of people with dementia has been launched to support carers to be informed and make decisions about respite by drawing on the powerful stories of other informal carers.
Commonwealth Respite and Carelink Centre (CRCC) – https://www.dss.gov.au
Landline connects to the local CRCC 1800 052 222 or after business hours and emergency respite 1800 059 059
Suncare operates the CRCC service on the Sunshine Coast. www.suncare.org.au 5436 3900
CRCC can provide emergency respite. It is better to be a registered carer to provide medical and other information of the caree to ensure that the best possible care can be provided should an emergency occur or if the the carer feels overwhelmed or fatigued by the caring role.
In-home respite services: Many organisations can provide in-home respite services. Check My Aged Care or DPS Publishing Aged Care Guide.
Day Respite Centres: Some may have family carer Support Groups.
Suncare Maroochydore 5443 7655;
Nambour & District 54414441;
Blackall Range, (Range Care) Flaxton 5445 7044;
Glasshouse Country Care 5494 6948;
Noosa Community Support 5329 6175;
Centacare Jessie Witham Centre Gympie 5482 8715;
Blue Care Coolum 54463877; Blue Care Gympie 5482 7533
Day and Overnight care: Blue Care Caloundra/Dickey Beach 5438 5000
Respite for family carers and (by discussion with the caree) Carers Outlook Nambour 5476 0642
CARERS QUEENSLAND – www.carersqld.asn.au
The peak body representing and advocating on behalf of carers throughout Queensland.
Maroochydore Office, 1/10 Wrigley St (Cnr Wrigley and Parker Streets). 5451 1882
Support Groups; Counselling; Education and Training; Advice; Advocacy; Social functions.
Dementia Family Carer Support Group held monthly. First Wednesday of month. 10 am – 12 noon. Please contact to register.
SUNSHINE COAST HOSPITAL AND HEALTH SERVICE – https://www.health.qld.gov.au/sunshinecoast/html/services/advance-care-plan.asp
For Consumers – A newly developed resource on the role of allied health professionals in assisting consumers and carers to maintain their quality of life while living with dementia. https://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0003/310836/Allied-Health-Professionals-and-You.pdf
For Allied Health Professionals – A matching guide for allied health professionals assisting consumers and carers to maintain their quality of life while living with dementia. https://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0004/310837/Better-health-dementia-allied-health-professionals-web2.pdf
CONTINENCE FOUNDATION OF AUSTRALIA – https://www.continence.org.au
is the national peak body promoting bladder and bowel health. People with dementia will inevitably have loss of control of bladder and bowel and they and carers will need support with advice, products and financial assistance.
Help line 1800 33 00 66
CARING FOR THE NEEDS OF DIVERSE CLIENTS WITH DEMENTIA – http://goccare.com.au/resources/
Memory book – A helpful resource produced by GOC to help carers provide culturally sensitive care to clients from diverse backgrounds. Examples here are for Greek and Arabic-speaking consumers:
AUSTRALIAN JOURNAL OF DEMENTIA CARE – http://journalofdementiacare.com/
Have you ever heard of the Australian Journal of Dementia Care? It’s been up and running since 2012, and is an Australian version of the long-running and well-known Journal of Dementia Care from the UK.
It comes out 6 times a year and is aimed at professional staff working with or supporting people with dementia – in hospitals, nursing and residential care homes, day facilities and the community.
You can download a free sample to take a look – just go to the Journal’s website. Sample articles from back issues are also available to read.
The Journal includes news and views, research, practice and resource updates, and events listings.
It’s published by Hawker Publications, the same company behind the UK Journal of Dementia Care.
ADA Australia https://adaaustralia.com.au
Aged and Disability Advocacy Australia is a not-for-profit, independent, community based advocacy and education service with more than 25 years’ experience in supporting and improving the wellbeing of older people and people with disability.
(ADA can help with lodging a complaint with a service; managing difficulties with your Enduring Power of Attorney, Guardianship or administration arrangements or with residential care, in home care or community care service in Qld)
Information and Advice Line 1800 818 338 Between 9.30 – 4 pm Monday to Friday
DEMENTIA CARE BOOKS
You Are Not Alone – Sue Downey
I Wish I Were a Leper Vince O’Rourke firstname.lastname@example.org
Speaker: Trish Shuter
Vince and Lorrae O’Rourke
Topics: What is Dementia? Behaviour and dementia. The carer’s role in dementia? Is Love Enough? Carer wellness.
Author Talk on book I Wish I Were A Leper