Dementia Month 2018

Dementia Month 2018

Sunshine Coast Dementia Network Activities: see calendar of events

Dementia Information Day : BE ACTIVE

26th Sept 2018

Ecumenical Service

27th Sept 2018

September is Dementia Month and around the globe, there is a dementia world that many live and work in:

People diagnosed with dementia

Family carers, relatives and friends.

Industry of health, caring, and advocacy services operate to work with people diagnosed with dementia: Drs, Specialists, in-home care, respite and nursing home staff, counsellors, allied health, financial planners, lawyers, advocates.

Researchers work hard at trying to find a cure for the many associated types or causes of dementia particularly Alzheimer’s disease.

Many researchers and educators work hard to find strategies and ways to support the person with dementia.

Family carer organisations support the family carer on this journey of caring for the loved one with dementia.

There are many positives in this dementia journey:

the meeting of people who care

the hope that one day discovery will see a cure for dementia syndromes

Here are some facts and figures.

https://www.alz.co.uk/

Facts:

  • Dementia is a term used to describe different brain disorders that affect memory, thinking, behaviour and emotion.
  • Early symptoms of dementia can include memory loss, difficultly performing familiar tasks, problems with language and changes in personality. View the early symptoms.
  • There is currently no cure for dementia, but a range of support is available for people with dementia and their carers.
  • Dementia knows no social, economic, or ethnic boundaries.
  • Alzheimer’s disease is the most common cause of dementia. Other causes include vascular disease, dementia with Lewy bodies and fronto-temporal dementia.
  • There are currently estimated to be over 46 million people worldwide living with dementia. The number of people affected is set to rise to over 131 million by 2050.
  • There is one new case of dementia worldwide every three seconds.
  • The worldwide costs of dementia are estimated at US$818 billion. As a result, if dementia care were a country, it would be the world’s 18th largest economy. If it were a company, it would be the world’s largest by annual revenue exceeding Apple (US $742 billion) and Google (US $368 billion).

Dementia is often hidden away, not spoken about, or ignored at a time when the person living with dementia and their family carers are most in need of support within their families, friendship groups and communities.

The social stigma is the consequence of a lack of knowledge about dementia and it can have numerous long- and short-term effects, including:

  • Dehumanisation of the person with dementia
  • Strain within families and friendships
  • A lack of sufficient care for people with dementia and their carers
  • A lower rate of diagnosis of dementia
  • Delayed diagnosis and support

The stigmatisation of dementia is a global problem and it is clear that the less we talk about dementia, the more the stigma will grow. This World Alzheimer’s Month we encourage you to find out more and play your part in reducing the stigma and improving the lives of people with dementia and their carers in your community.

 

https://www.dementia.org.au/   1800 100 500

Dementia Australia Stats:

  • Dementia is the second leading cause of death of Australians.
  • Dementia is the leading cause of death among Australian females.
  • Dementia is the third leading cause of death among Australian males.
  • Three in 10 people over the age of 85 and almost one in 10 people over 65 have dementia [2]
  • Currently an estimated 250 people are joining the population with dementia each day. The number of new cases of dementia will increase to 318 people per day by 2025 and more than 650 people by 2056[2]

 

https://www.alz.org/abam/overview.asp#goPurple

https://www.alz.org/abam/overview.asp#takeAction      https://shop.alz.org/Search.aspx

 


Webchat feature on the National Dementia Helpline

Alzheimer’s Australia’s National Dementia Helpline has recently expanded to offer a webchat function – which means people can now get in touch with a Helpline ‘Dementia Advisor’ and have a typed online conversation. For some people this may be just what they are after. The webchat service operates Monday to Friday from 9 am to 5 pm EST. You can access the Webchat here .


Relationships and dementia

This Alzheimer’s Australia NSW discussion paper explores how dementia affects relationships, in particular looking at role and identity, emotional and physical intimacy, grief and loss and positive impacts. The paper’s findings are based on a survey which drew responses from nearly 200 people (mainly family carers), and the report includes lots of quotes from people with dementia and family carers. The report’s authors say there is a need to improve access to range of key supports, including respite, counselling and support groups. To download the report, click here.


Ensuring a smooth journey

A new guide to Brisbane Airport’s International Terminal for people living with dementia and their travel companions is just out. The 35-page guide covers topics such as preparing for your journey, getting to the airport, checking in and flying out, and flying in to Brisbane. The guide comes at the end of a 2-year project with QUT’s Dementia Centre for Research Collaboration to improve facilities for people with dementia at the airport. As a result of this work, Alzheimer’s Australia now says this is Australia’s most dementia-friendly airport. To access the guide, click here.


Dementia-friendly communities

Alzheimer’s Australia has revamped its website dedicated to dementia-friendly communities (go to www.dementiafriendly.org.au), and within it now has a new resource hub also related to dementia-friendly communities. This is a good place to check in to find out what’s happening with any and all dementia-friendly communities projects throughout Australia. It is also the place where you will be able to sign up to become a ‘dementia friend’: first, just complete a simple module online.


‘What not to say to someone with dementia’

‘What not to say to someone with dementia’ This easy-to-read short article tackles head-on some of the more painful questions that are put to people with dementia. It covers statements such as these: ‘I’ve just told you that’ or ‘Your brother died ten years ago’ or ‘What did you do this morning?’. For each, it explains why this might pose difficulties for the person with dementia, and what to try instead.  It comes from the Alzheimer’s Society UK.


Love to Move

Love to Move is a new guidebook which shows how to tackle 5 chair-based exercises aimed at people with dementia to do at home. The explanations are clear, and accompanied by good-sized photos – so is easy to follow. It comes from the British Gymnastics Foundation, which has been leading a successful exercise program in care homes and community settings for people with dementia for some time now.


Dementia and sensory challenges

Dementia involves more than memory challenges. This resource looks at sensory challenges arising for people with dementia – such as seeing, hearing, smell, touch – and how these senses might be experienced differently when living with dementia. The booklet is the work of Agnes Houston, long-time dementia campaigner and advocate, who spoke with a range of people with dementia about their experiences of sensory challenges, and then included their contributions in this booklet. It includes a ‘Stuff that helps’ for each area. HammondCare is now promoting the resource within Australia, including a new short film with Agnes linked to the booklet. Dementia and sensory challenges


Dementia-friendly bathrooms

Did you know that Alzheimer’s Australia (Qld) is offering a limited number of $75 vouchers to be used at Bunnings, to help people with dementia make their bathrooms more dementia friendly?

To find out more, go to Alzheimer’s Australia’s website here or contact Alzheimer’s Australia Qld on 1800 588 699.