Travelling with Dementia

Planning on going on a cruise? Flying to somewhere far away? A new booklet from Alzheimer’s Australia on Travelling and holidays with dementia tackles some of the practical challenges that can arise when a person with dementia is going on holiday. The booklet includes lots of suggestions and tips, and is set out alongside some lovely holiday photographs and quotes from family carers about how they prepared for their travels.

The booklet looks at travelling by various different ways – sea, air, car and public transport – and sets out some of the challenges and some strategies to consider. It looks at planning holidays, tips about accommodation, and things to consider on return. You can access the booklet here: 

Rethink Respite

For some time, the ‘Rethink Respite’ project has been working hard at improving take-up of respite among carers of people with dementia in Illawarra, NSW. As part of this it has developed some really good resources on respite for people with dementia, which are available on its website here. The project is now launching a new national study which will involve offering a series of online education and support sessions for carers to encourage them to give respite a try. Carers who are interested in accessing this sort of support are encouraged to find out more here.

Launch of ReThink Respite Online

How do I choose?

The Alzheimer’s Australia (Victoria) library has been producing an interesting blog on all thing related to dementia resources for a few years now (it’s worth a look any time). In November they’ve put out a list of 20 of the most borrowed items from the Alzheimer’s Australia libraries during 2016. They say they’ve chosen the list based on four criteria: it’s well written, gets consistently good feedback from borrowers, positive reviews from professionals, and that the library staff love it – something like ‘We recommend…’ stickers in book shops. So, perhaps you might find a Christmas present ideas or two here?! The list includes a range of books: personal accounts of living with dementia (‘Green Vanilla Tea’ by Marie Williams), fiction (‘Still Alice’ by Lisa Genova), DVDs and guides. 

Adventure with Dementia! New Buderim Social Group

Get involved with a new social group in Buderim, Adventure with Dementia!, that involves doing activities that are fun, active and chosen by you!

This will also provide the opportunity to create new friendships and enjoyment and will be a great way to stay connected with the local community.

We understand from various feedback that the current social support or respite model is not to everyone’s preference so we are hoping to offer you something that is directed by you, a social group that you will enjoy.

Alzheimer’s Australia (Qld) in partnership with Bromilow Home Support Services and through funding from the Buderim foundation are offering this active social group to the residents of the Buderim and surrounding communities on the Sunshine Coast.

We are launching the group on Tuesday 24th January 2017, please follow this link for further information and to have your say!


Or click here to download the printable Launch Invitation!


Clinical Practice Guidelines on Dementia

This year saw an important breakthrough – the launch of Australia’s first Clinical Practice Guidelines on dementia, to give guidance on best practice in dementia care in Australia.


Now, an adapted version of these guidelines – aimed at people with dementia and carers – has been published. The 20-page guide is easy to read and sets out clearly what people with dementia and carers can expect: on diagnosis, assessment, care and support at home, advance care planning, and healthy living. The guide includes short lists of practical questions that people with dementia or carers can ask, for example, ‘Questions to ask about diagnosis’ or ‘Questions to ask about community services’.


The guidelines were developed with input from people living with dementia and carers working with the National Health and Medical Research Council’s Cognitive Decline Partnership Centre in Sydney, the same group that developed the Guidelines. The guide is available to download online and is called A consumer companion guide to the Clinical Practice Guidelines and principles of care for people with dementia.

Australian Journal of Dementia Care

It comes out 6 times a year and is aimed at professional staff working with or supporting people with dementia – in hospitals, nursing and residential care homes, day facilities and the community.

You can download a free sample to take a look – just go to the Journal’s website. Sample articles from back issues are also available to read.

The Journal includes news and views, research, practice and resource updates, and events listings.

It’s published by Hawker Publications, the same company behind the UK Journal of Dementia Care.

Don’t let dementia stop your next adventure!

ozcareroadtripsdementiaA booklet about hitting the open road – while living with dementia – has been launched by not-for-profit care provider, Ozcare, at Toowoomba’s Spring Home Show Camping and Leisure Expo.


Ozcare has a team of specialist dementia advisors based throughout Queensland – including the Sunshine Coast – and increasingly, the advisors are picking up on issues faced by older Australians who are pursuing their dreams of travelling around Australia during retirement.

Sue Radecker, one of the Ozcare advisors, is a keen traveller herself and wants people with dementia to be able to continue this lifelong interest. But she’s also seen the difficulties that couples can face when they set out on their trip of a lifetime, if memory loss or dementia is an issue.

“Being in a different environment, reading maps, working out where to find public toilets – these can pose challenges for anyone who is travelling, but can be harder when someone is living with memory loss or dementia,” Sue said.


“The key is being prepared and doing some homework before you go,” she went on to say, “For many people living with dementia, they can continue to travel and enjoy it greatly.”

The booklet sets out answers to some key questions, such as ‘What should we check before we go?’, ‘What should we take?’, ‘What should we consider while travelling?’ – and even ‘Who could we turn to for help if needed?’.

People with dementia have been involved in developing the content for the booklet, based on their experiences of road trips in Australia. The team hope that other travellers who are gearing up for a road trip will benefit from the advice in the booklet.

The booklet, called ‘Road trips: with dementia in mind’, can be downloaded from Ozcare’s website. The booklet is part of a new section on Ozcare’s site, specifically on dementia care. To get in touch with the Sunshine Coast office of Ozcare, telephone 1800 692 273.



One man turned nursing home design on its head

92-year-old Norma had a strange and heartbreaking routine.

Every night around 5:30 p.m., she stood up and told the staff at her Ohio nursing home that she needed to leave. When they asked why, she said she needed to go home to take care of her mother. Her mom, of course, had long since passed away.

Behavior like Norma’s is quite common for older folks suffering from Alzheimer’s or other forms of dementia. Walter, another man in the same assisted living facility, demanded breakfast from the staff every night around 7:30.

Jean Makesh, CEO of Lantern assisted living facilities, says he meets folks with stories like these every day. It’s their stories that inspired him to make some changes at Lantern.

“I thought I knew a lot about elderly care. The more and more time I was spending with my clients, that’s when I realized, ‘Oh my god, I have no clue.'”

Click here to read the full article