The social gathering of people with dementia and family carers enjoyed a social catch-up at the Nambour RSL on 10th September, 2020.
Ken, a family care said, “it was lovely”. We enjoyed some laughter and shared some feelings of loss. The group members had some interesting stories form world travels from England and South Africa. Kath had been a professional singer and her hubby is now in a residential care facility.
To be with others who share the journey of dementia and caring is very special.
We looked for the purple rose set up at the tables reserved for us.
If you are interested in attending the next one. It will be on November 12th, 2020. 10.15 am. Please register
at Mooloolaba TAFE, Sunshine Coast, Qld, Australia.
Alzheimer’s disease is the major form of dementia but there are others including Vascular dementia, Lew Body dementia, Fronto-temporal dementia and Huntington’s disease. There are other medical conditions which may present some dementia symptoms. Some people diagnosed with Parkinson’s, Multiple Sclerosis, Down Syndrome, Stroke, Epilepsy, Brain injury, Brain cancer, Alcohol or Drug Toxicity may develop dementia.
This conference is to be inclusive for the medical conditions Under the Umbrella of Dementia. Speakers will give information on Dementia, Communication, Driving, legal issues, changes in relationships, the caring role and grief.
Organisations like Wellways, Down Syndrome will have have a display table. Tables of information on dementia and related disorders will be a showcase for participants to add to their resource library.
Participants, people with dementia and related disorders, family carers, staff and interested persons will be able to network and gain contacts and support.
We thank the many speakers and helpers to make this an avenue of growth and support.
We are very grateful to Mooloolaba TAFE for this venue which is maintained for Coronavirus restrictions. We thank Peta Simpson, New Staff Solutions and Todd Redman, MGA Insurance Brokers for financial support.
Bromilow Community Care has provided a tracking device, Peace of Mind Pendants as a raffle/door prize. It sends emergency alerts that works anywhere there is mobile coverage. Other groups like Candice Care and Estia Health have donated gifts for lucky door prizes.
As this is a Network of Volunteers, with no government funding, we gratefully accept donations.
Please contact Lorrae on 0418 298 183 for more information or see the attached flyer in the events page.
is an event for people with dementia and related disorders and carers to come together and have a chat. The need for understanding can be developed with others who are experiencing the similar journey in life. Many people can become isolated but not in this gathering.
The volunteer facilitators, Vince and Lorrae have been family carers. Lorrae and Chrissy have been facilitators of Support Groups in a professional capacity.
Where and when: RSL Nambour. Thursday, 10th Sept, 10 – 12 noon. See flyer in events section.
Sunshine Coast Dementia Network Activities: see calendar of events
Dementia Information Day : BE ACTIVE
26th Sept 2018
27th Sept 2018
September is Dementia Month and around the globe, there is a dementia world that many live and work in:
People diagnosed with dementia
Family carers, relatives and friends.
Industry of health, caring, and advocacy services operate to work with people diagnosed with dementia: Drs, Specialists, in-home care, respite and nursing home staff, counsellors, allied health, financial planners, lawyers, advocates.
Researchers work hard at trying to find a cure for the many associated types or causes of dementia particularly Alzheimer’s disease.
Many researchers and educators work hard to find strategies and ways to support the person with dementia.
Family carer organisations support the family carer on this journey of caring for the loved one with dementia.
There are many positives in this dementia journey:
the meeting of people who care
the hope that one day discovery will see a cure for dementia syndromes
Dementia is a term used to describe different brain disorders that affect memory, thinking, behaviour and emotion.
Early symptoms of dementia can include memory loss, difficultly performing familiar tasks, problems with language and changes in personality. View the early symptoms.
There is currently no cure for dementia, but a range of support is available for people with dementia and their carers.
Dementia knows no social, economic, or ethnic boundaries.
Alzheimer’s disease is the most common cause of dementia. Other causes include vascular disease, dementia with Lewy bodies and fronto-temporal dementia.
There are currently estimated to be over 46 million people worldwide living with dementia. The number of people affected is set to rise to over 131 million by 2050.
There is one new case of dementia worldwide every three seconds.
The worldwide costs of dementia are estimated at US$818 billion. As a result, if dementia care were a country, it would be the world’s 18th largest economy. If it were a company, it would be the world’s largest by annual revenue exceeding Apple (US $742 billion) and Google (US $368 billion).
Dementia is often hidden away, not spoken about, or ignored at a time when the person living with dementia and their family carers are most in need of support within their families, friendship groups and communities.
The social stigma is the consequence of a lack of knowledge about dementia and it can have numerous long- and short-term effects, including:
Dehumanisation of the person with dementia
Strain within families and friendships
A lack of sufficient care for people with dementia and their carers
A lower rate of diagnosis of dementia
Delayed diagnosis and support
The stigmatisation of dementia is a global problem and it is clear that the less we talk about dementia, the more the stigma will grow. This World Alzheimer’s Month we encourage you to find out more and play your part in reducing the stigma and improving the lives of people with dementia and their carers in your community.
Alzheimer’s Australia’s National Dementia Helpline has recently expanded to offer a webchat function – which means people can now get in touch with a Helpline ‘Dementia Advisor’ and have a typed online conversation. For some people this may be just what they are after. The webchat service operates Monday to Friday from 9 am to 5 pm EST. You can access the Webchat here .
This Alzheimer’s Australia NSW discussion paper explores how dementia affects relationships, in particular looking at role and identity, emotional and physical intimacy, grief and loss and positive impacts. The paper’s findings are based on a survey which drew responses from nearly 200 people (mainly family carers), and the report includes lots of quotes from people with dementia and family carers. The report’s authors say there is a need to improve access to range of key supports, including respite, counselling and support groups. To download the report, click here.
A new guide to Brisbane Airport’s International Terminal for people living with dementia and their travel companions is just out. The 35-page guide covers topics such as preparing for your journey, getting to the airport, checking in and flying out, and flying in to Brisbane. The guide comes at the end of a 2-year project with QUT’s Dementia Centre for Research Collaboration to improve facilities for people with dementia at the airport. As a result of this work, Alzheimer’s Australia now says this is Australia’s most dementia-friendly airport. To access the guide, click here.
Alzheimer’s Australia has revamped its website dedicated to dementia-friendly communities (go to www.dementiafriendly.org.au), and within it now has a new resource hub also related to dementia-friendly communities. This is a good place to check in to find out what’s happening with any and all dementia-friendly communities projects throughout Australia. It is also the place where you will be able to sign up to become a ‘dementia friend’: first, just complete a simple module online.
This 16-minute animation is narrated by Tony Robinson and was developed by Professor Alison Wray from Cardiff University. It does a wonderful job of explaining the complexities of basic communication for people with dementia, and of the importance of empathy.
‘What not to say to someone with dementia’ This easy-to-read short article tackles head-on some of the more painful questions that are put to people with dementia. It covers statements such as these: ‘I’ve just told you that’ or ‘Your brother died ten years ago’ or ‘What did you do this morning?’. For each, it explains why this might pose difficulties for the person with dementia, and what to try instead. It comes from the Alzheimer’s Society UK.